29 August, 2017 22:58

Every day that I feel good, I have to push, drive, make myself get stronger while I can. I don’t know if I’m getting better permanently or just for now. I’ll take these days I’m getting now, and I will try my very best to get better, to be better, until I can’t.

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Bucket List, next up, Victory!

Wow. I have taken a step I never thought I would get to take. With Fibromyalgia, Migraines, Arthritis, Metallosis and bi-lateral hip replacements, I never thought I would get to try something like this ever again.

I have started the USA Fit Marathon Walking class! Yep, 22 weeks of training until I walk the Austin Marathon in February. The class is official, but the marathon itself is not. I will register for it on September 10th if nothing changes by then. I’m using the time between now and then to make sure that this is actually possible.

I had become almost immobile over the past year. Even small amounts of daily exercise resulted in terrible fibro flares, causing pain and fibro fog. Even while dealing with that, I was wrapping my head in ice and taking meds with bad side effects to fight the next migraine. The fibro fog was so bad I was considering quitting work and filing for disability, a severe hardship to my family, but it was so bad that driving, thinking, managing people and designing were becoming impossible. Home wasn’t much better, and my spouse took on more and more responsibility with the household and our teen son, and I faded further away.

Then came the day for the last ditch effort to get better. My search started with a way to improve brain function. I could deal with he pain, I had for years, but the reduced cognitive function was going to destroy me. Unable to think straight, unable to participate in so much, I began to sink into a depressed state as well, almost giving up. I began to search everything about brain function, dementia, Alzheimer, ADD, and anything else I could find. It was hard. Hard to understand the science in my condition, but I started figuring it out.

July 6th, 2017, just a few short weeks ago, I started a strict Ketogenic diet. It was hard at first, seeming to get worse the first week with what they call Keto Flu, but it passed. This diet extols the benefits of improved brain function, and I wanted it to work, bad! So far, I am very happy. I have done other things too to improve my symptoms, and am in the process of writing everything up and calling it Jo’s Fibro Protocol. I’ll post it here soon.

I am pinching myself now, because this is a dream. I am doing the impossible. I am walking 3 miles a day, and doing Yoga and Pilates. I am going out in the evenings with my family. Saturday, I walked three miles and did 20 minutes of fit yoga, an hour and a half of movement, I did chores at home, took an hour long nap, did more chores, made dinner, and then went with friends and family to Dave and Busters. We were out until midnight.

It did not cost me my entire Sunday and Monday from the inevitable fibro flare. I got up Sunday, did more chores, walked 2 miles and was active the rest of they day, only collapsing into be after a very satisfying Game of Thrones! Today is Tuesday, and I still feel fine. Eager to walk my three miles tonight.

Fibro fog is not yet gone, but it is much better. I can think again! I’m getting better quality sleep.

I am in a dream now, and almost scared to say this, but I am getting better! I want you too as well!

Peace, jo

List’s and Fibro

Everyone, please check out Wunderlist.

It’s live, so that anyone you share your list with, gets the update instantly.

I have grocery lists that I share with the entire family, that way no matter who stops, they have the very latest list. I have private lists that only my spouse and I share so that we can add Christmas and birthday gift ideas for our kid. I have a packing list, one for camping, one for the beach, one for every time I go anywhere, one for grandma’s house, etc. I have my personal to do list that I share with no one. I have a long range to do lists, like, “land tax is due in January”, and I set a reminder for December.

It is easy to use, intuitive and always with you. Each list can be shared with whoever you want. This little app helps me so much. I use the free version, but will gladly pay if they ever insist, lol.

If you can’t keep stuff in your head, this is the ultimate list!!!!

Jo

Let the experiment begin!!

I started Magnesium-L-Threonate. It’s crazy expensive, so it gets 30 days!

I think my Fibro Fog has gotten better. The things I am doing to help clear it are, Savella, Ketogenic diet and bulletproof coffee. It has taken about 6 weeks to start to feel any mental clearing and energy from these. However, I do feel that I am starting to feel some better.

Here is another article about Magnesium-L-Threonate. If you have better article and how it relates to Fibro Fog, let me know in the comments!

The Brand I chose is Doctors Best. I have a question. Should I continue my regular magnesium, or is this all I need?

j

Jo’s Chicken Parmesan (Keto Friendly)

One package skinless chicken thighs

Shredded or grated Parmesan cheese

2 eggs

Optional – 1 container of tomato sauce for dipping (Make sure it is low carb)

Optional – Zucchini noodles if serving hot

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  1. Cut chicken into nugget sized pieces and set aside.
  2. In a large bowl, beat eggs together, then add enough Parmesan cheese to make the mixture into a thick paste.
  3. Add chicken chunks and mix with your hands until all the chicken pieces are coated.
  4. Fry chunks in hot olive oil until golden brown and done through.
  5. Place on paper towel to drain and you’re done.

*****************************************************************

This is a tasty hot meal to be served with zucchini noodles and sauce.

For snacking, refrigerate and serve cold with tomato sauce for dipping.

I’ll post pics of this as soon as I make it again (which will be soon, cause now I’m craving it!)

Keto Friendly and a happy belly!

*You are going to ask me about a nutritional breakdown for this, but I don’t have one yet. I will work on that, along with the photos!

Jo

For the One I Love

Have you seen this post on Facebook?

“Please, in honor of someone who is fighting Lupus, MS, Crone’s, Scleroderma, Ulcerative Colitis, Fibromyalgia, Sarcoidosis, Lymphedema, Rheumatoid Arthritis, Fibromyalgia, Ankylosing Spondylitis, Hepatitis, Diabetes, Celiac, Sarcoidosis, Hashimotos Thyroiditis, PBC,CIDP, Aplastic Anemia. Please copy and paste, do not share.”

Well, this is a new one. This is the one I would like to see break the internet.

Some will never understand the struggle, but those who love you will try.

When my wife asked the doctor, “When will she get well?” and the doctor answered, “Never”, she was heartbroken, but she has been unflagging in her support of me on good days and bad. She has endured the effects of different diets, various exercises, yoga, Pilates, supplements, expensive vitamins and every other thing anyone has ever mentioned that might help me. She has sat through doctors tests and exams, and treatments and done absolutely every chore, managing work and home and kid and me as the new thing we are trying worked, or didn’t work, or worse, made me sicker. She has sat by my side every. single. time, unwavering.

And me? I have tried every single day to get well from a disease I can’t get well from. Sometimes I just get tired.

When I get tired, she is there. Every day my spouse encourages me to run if I need to run, rest if I need to rest, and cry if I need to cry, and hold my heart through it all.

Let this post be for her. For her unfailing dedication, for her love and support, for her tolerance and sacrifice.

Tag the person who is always there for you to say Thank You.

J